"Tracheobronchomegaly" is the medical name for the degenerative and rare lung disease known otherwise as "Mounier-Kuhn Syndrome".
Mounier-Kuhn - what is it?
Saturday, July 31, 2010
Tuesday, July 20, 2010
Welcome...
There is little by way of support for this rare disease called; "Mounier-Kuhn Syndrome", either around the globe or within the big wide system of cyberspace.
Hoping to cross the universe by way of this humble little blog on the intensely personal subject, reaching out toward others with the same diagnosis of said disease, or one of the three other lung diseases which one becomes predisposed to over time from the onset of MKS;
"Bronchiectasis, Pulmonary Fibrosis, Emphysema".
Unfortunately my disease has reached a stage whereby I've recently visited a lung transplant surgeon, and the preliminary red tape towards the latter end stage of my disease, quite literally rocking my world.
The process has begun for me towards this next step in my medical journey.
The process has begun for me towards this next step in my medical journey.
Therefore, I would love to hear from you if you are also perhaps from a medical team and/or a transplant team who has questions or suggestions. Maybe you have a story to share of a loved one with a lung disease and can offer encouragement, support, good cheer or a few warm thoughts from knowing those who have walked similarly before me.
Please come again, and feel free;
- to bookmark the blog at the link HERE
- pass along the blog address to others who might hope for lung disease information or support
- email this blog post or blog address to others who may be interested in lung disease issues
- help us to link-up to others to offer the world some sorely deserved "Mounier-Kuhn Syndrome" awareness
- become a follower of the blog so keep abreast of news and information for others with lung diseases
- or simply offer prayer for all those afflicted by lung diseases in general.
- drop us a note and introduce yourself. Maybe you can offer a suggestion for this blog. Either way, we'd love to hear from you.
Thank you so much for visiting this day!
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Monday, July 12, 2010
The sunsets in our days ...
"Slip away and watch the sunset."
... there are more calls to finish
"Those will wait. The sunset won't."
~ The Guardian, Dee Henderson
For you who suffers from the effects of a lung disease;
When breathing becomes labored
know there is another who
suffers similarly as you
Life is precious
Be thankful for all life's moments
And hug the ones you love often
When morning's sunrise appears
and the lungs beckon attention to clear
the day will always offer you
multitudes of blessings
and copious amounts of good cheer
No matter how tough your moments
There is always a beautiful sunset
most guaranteed to be
an exquisite crowning glory to your day
Attitude counts!
What will yours be like today?
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