Friday, February 25, 2011

Rare Disease Day - February 28th, 2011



Get involved! 

Find you more about this great designated day by clicking over to their website, located HERE. 

Still working hard behind the scenes. 

  • Mounier-Kuhn Syndrome is now on TWITTER, using our handle of "MounierKuhnSynd" (**no hyphen all one word), and nicely attached to every lung association and foundation worldwide, as well as every respiratory type of doctor and professional we could find. Just getting the name circulating will assist in MKS awareness. 

  • Mounier-Kuhn Syndrome Journey is now also set up as a community page on Facebook. Come on over and "LIKE" the page, also aiding in the goal to create even more awareness to this rare disease. 
 
We are hoping by this time next year, Mounier-Kuhn Syndrome will be a lung disease featured on the "Rare Disease Day - 2012". 


How are you bringing awareness and helping get the word out about MKS? 
We'd love to hear from you.

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